Professor Charlotte Clark (School of Health in Social Science); Honorary Professor John Starr (respondent) (Geriatric Medicine): Art and Health: Inciting Dialogue and Disruption in Dementia - and the Making of the Film ‘Michael’s Map’
People with a diagnosis of dementia experience many changes to their social networks - and the dynamics of these changes and their effects were explored in a participatory secondary data analysis project funded by the Economic and Social Research Council. The research re-analysed a qualitative dataset of 156 interviews with people diagnosed with dementia and their family carers which had been collected as part of the Department of Health funded study into peer support and dementia advisor roles within the National Dementia Strategy for England. We worked with a further 35 people living with dementia to co-analyse the data, using the format of a series of four workshops with each of four groups to achieve this. An analytical framework was based on: Douglas' cultural theory of risk, and Tronto’s ethic of care framework. In this research process, the analysis moved between individual voices and composite pleural voices – firstly, having heard the ‘individual’ narratives of people living with dementia in the original interviews, and secondly worked with a further 35 people living with dementia during the secondary data analysis, the research process thirdly joins the identified research themes together in the development of a created and performed single narrative (Michael’s Map, developed in partnership with Skimstone Arts) – leaving the final voice of interpretation with yourself as audience rather than in the academic telling.
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[Cultural Conversations: Cultures of Global Health Lunchtime Series]